Tuesday 28 May 2013

To name a few

Work
Volunteering
Family
Seizures
Housemates leaving
Hospital appointments
Sorting the house
Friends
Constant tiredness
Big decisions
Meeting new people
Knock backs

etc..etc..

Be back soon <3

Wednesday 22 May 2013

The hard stuff

A lot of stuff has happened over the past week or so, I can't say what or who it involves as it wouldn't be fair but my gosh is it hard.

My job also got reviewed. It wasn't as bad as I thought it would be actually. It was still very hard to take though. I know very well that everyone involved have only got my best interests at heart and I'm very thankful for their time in supporting me. I'm a stubborn one though and having to be told face to face that I need to think through my actions and their consequences is a hard one to take. I felt a little like a child but again I know that this wasn't the intention. I know I have to prepare for this happening time and time again in the future but again it's hard to swallow as I simply don't want to have to. 
Basically the end conclusion is that I am not allowed to be on campus by myself. I have to make sure I have people around at all times which means I can't work in my beloved office anymore unless there is someone around... which is not very often. Believe me I know it all makes sense I just don't like to be out of control and I feel like any sense of control I do have left is slowly but surely being taken away from me. There is a way around everything though and it's just a matter of making yet more adjustments so I'm sure I'll survive! 

I'm very happy to have been contacted by a various people recently as a result of my blog. I promise to get back to you very soon I'm just not afraid to admit I'm feeling a little low at the moment and I don't want to give half hearted responses but let it be known I truly appreciate the contact :)


Thursday 16 May 2013

The job review :(

Wednesday in the office I had a seizure fell backwards and banged the back of my head on something. I don't remember a thing from earlier that day apart from the nurse waking me up 5 hours later after sleeping it off in the medical centre. We had to fill out an accident form which I didn't think much of  until today when the nurse phoned me on my way home. She told me that occupational health had phoned her to go over what happened and they want to speak to me. Long story short, tomorrow morning my job is being reviewed because of my "situation" :( 

This lovely piece of information came literally hours after finding out that one of the internship programs that I am part of is being extended. I would do ANYTHING to be the person they choose but with this slight issue I have that awful feeling I'll be out of the running. 

Now I like to think of myself as a positive person but this stuff is REALLY getting me down. 

Only time will tell I suppose. 

Wednesday 15 May 2013

Egghead

Life has gone a little crazy and involves some lovely bumps to the head... I'll be back shortly! xx

Saturday 11 May 2013

Simple gestures

A friend of mine is doing a 40 mile sponsored walk today in not so brilliant weather to raise money for the wonderful charity that is Epilepsy Sucks UK

I'm so so grateful to her and her fellow companions! This charity really is incredible offering free anti suffocation pillows who suffer with seizures during their sleep from ages 2 and up! I am lucky enough to have received one of these pillows well over a year ago and can easily say it has been one of my saviours. Along with the pillows they also offer invaluable personal support through a closed group on Facebook (search Epilepsy Sucks if interested). 

It's little bits of funding like this that literally saves lives everyday while barely anyone would notice. 

Amazing people, I wish I could truly pass on how much appreciation there is out there for people like these!

Friday 10 May 2013

Reflecting


I'm on lunch at work at the moment sitting in one of the canteens with a crowd of students around. Looking out of the window I can see people working to set up the marquees etc needed to house the universities May ball this year. It's a strange thing to see simply because this time last year and the three years previous I would have been excited to join in the celebrations as a student myself. It's taken a long while to get used to the fact I'm a member of staff here now rather than a student but I've finally got my head around it. I love it here, I really do and it's with a heavy heart that I know my internship finishes early next month. I have no idea what life with involve next or where it will take me. I don't want to leave but I also know that I have to so now it's just a matter of absorbing whats left of my time and spend a much time as I can with the brilliant people I have met in the last few months. 

It's funny how life plans out, this time last year I was sad because I was graduating after 4 years here little did I know I would have the fabulous opportunity to come back! 

Time to leave my impression on the place! 

Saturday 4 May 2013

The predictable

I knew it would happen but oh my gosh it could not have been worse timing! I had a deadline to meet at work and a VERY important one :/ I was all on track to finish it on time when I decided to go and grab some lunch with a friend of mine at work. Then of course after having finished my lunch guess what crept in. Yep flipping seizures :( and that was that I had to spend the rest of the afternoon when I was supposed to be finishing my project with the nurses :( It took two doses of my rescue medication Clobazam for the seizures to finally disappear. Meaning a drugged up woozy mess of a Jade. I couldn't go home after either as I was still pretty bad so went to stay with my friend who was with me and who lives in the same village as I work. She has never seen me as bad as that I hope I didn't scare her too much. 

The past couple of days were spent in seizure hangover mode just plodding around catching up on the time I'd missed and by the end of the day my little project was complete be it a little late. Phew.

I'd been longing for my bed all week but put on the "I'm fine" face (at least I hope it came across that way..) Lovely relaxation evening involving candles, comedy shows on the TV and my cosy bed was my plan for last night... and guess what.. it happened and I feel SO much better for it!


Anyway I had a nice afternoon planned today going along to some events for Diffusion photography festival in Cardiff it really was lovely to catch up with some people and soak in the arty goodness. I'm off to my mums tonight for a little while (she's been bugging me to visit for ages) to chill out a bit. There's nothing like family time, cosying up with the cats and your own mothers cooking for a good bit of therapy.


Also I can't stop listening to this since it came up in program I caught a bit of the other day. Retro and loving it <3